There are some hard things that I have been dealing with about Kevin that probably started before he was even two years old. It was interesting because I would tell people about things that he did and they would say, "Oh, yeah, that's just boys. They're really active." But that never sat right with me. It was more than just that he's a boy, but it's been hard to put my finger on what exactly it is. I hoped that over time he would grow out of it, but in many ways it's stayed the same or gotten harder.
A couple of years ago there was a boy in the ward who, I learned, had Sensory Processing Disorder, and I ended up asking his mom to tell me about it. It was a really helpful conversation, and ever since then I've suspected that Kevin is also dealing with sensory processing issues. My friend recommended an occupational therapist, but I kept procrastinating making the call, thinking that he might grow out of it or that I could deal with it myself.
Now that he's started school I've become even more aware and concerned about some of his behaviors. He's getting a little better now, but for the first month he had a hard time getting along with peers on the playground and on the bus, and after getting a couple of notes and a phone call from the school I got really worried and decided we really should at least get him evaluated by an occupational therapist. I was ready to get some help and some answers, because I don't understand what's going on. The interesting thing was that after I made the phone call, Kevin came up to me and started crying and asked me what I had been talking about on the phone. I realized that he's aware that he's struggling with some things and it bothers him, even though he doesn't really have the resources to explain those feelings verbally.
Last Wednesday we had an evaluation with the OT. We talked about the things we are dealing with and discussed some things that we would like to work on with Kevin during therapy. It was reassuring to realize that it's not just my imagination--there really is something going on. I told her that he is constantly running away from me, explained what we go through every time I take him to a store, and explained what we have to deal with every time I have to bring him back in from playing outside, and I could tell from her response that this is not just Kevin being a normal active boy. So once we get things approved by insurance we will probably start to do some occupational therapy and get an idea of what's going on with his body and what helps him. The OT agreed that he is struggling with some sensory processing--definitely the tactile sense, and probably the auditory and the proprioceptive sense.
Here are some of the behaviors we have been dealing with:
He runs away from me. Usually at playgrounds it's a constant battle to make him stay at the playground where I can see him. We've been bolting the apartment door since he could reach it because he would run out in the hall all the time. Even now he will get a chair and run out in the hall once or twice a day, and often more on the weekends. He doesn't stay in the bounds I set or pay attention when I tell him to come back.
He almost always throws a tantrum when we have to leave fun places like the park or friends' houses. Most of the time I have to drag him physically, and he will hit my hands to try to get me to let go of him. This is despite the fact that he actually has a hard time being in groups of people for long periods of time, which is often why we're leaving the park in the first place.
Going to stores or other places with crowds is always a huge ordeal with him. Just getting him to the car takes forever because he gets distracted by so many things, and then once we're at the store he has to touch EVERYTHING. He just can't help himself. It makes shopping trips take forever.
When his need for touch is out of balance, he goes nuts. He'll make loud and distracting noises, bounce in his seat, get aggressive, dump out tons of toys, and more. We've figured out that most of the time when it gets like that, the best way to calm him down is to squeeze him really hard. It usually makes him grin and he'll beg you to squeeze him harder and harder. After a lot of squeezing his behavior will get a little better. But sometimes, he can barely stand to be touched at all. One time he got off the bus very angrily, and when I tried to gently hold him in place to ask him what was going on, he couldn't stand for me to do that and told me I was breaking his bones.
He has a hard time gauging his own strength. He'll hug us so tight or bump into us so hard that it hurts without realizing he was hurting us. He used to hug the baby so hard that she would start crying.
He has a hard time following directions and answering questions directly. He gets distracted.
There isn't really any official diagnosis at this point. I don't think that's even necessarily the goal. I guess the closest thing is Sensory Processing Disorder. One of the most frustrating things over the past few years is feeling the judgment by some parents who don't get it. There have been babysitters or primary teachers who would try to curb the behavior by being really strict because they didn't understand that he can't help it (which caused a lot of stress for Kevin). The worst are the judgmental looks from strangers who see a kid who looks like a second grader (have I ever mentioned Kevin is really tall?) acting up and seem to think that it's a parenting problem. That hurts. I really, really appreciate the moms who have been supportive and nonjudgmental.
I am hopeful that OT will help us understand better what Kevin is dealing with and how to help him. This is really unfamiliar ground for me. What I do know is that Kevin is God's son and that he came to our family for a reason. We have the spiritual resources to help him grow and develop. Other people may be ignorant and misunderstand him, but I will never, never give up on him, and neither will Heavenly Father.